Mon Oct 16, 2006 5:02 pm
My daughter is 14 and has been diagnosed with severe protrusioacetabuli in both hips. In December 05 she was diagnosed and did not have any symptoms. By May she was limping and this summer she went from walking with a cane to being in a wheelchair. She now can walk only around the house with the aid of forearm crutches. We are awaiting surgery dates for either BHR or THR. Have any of the people with this condition experienced such rapid deterioration? Her case is very complicated by the fact that she is so young.
My daughter’s condition is primary.We had no idea of any problem as she has been a very athletic child. In December she was playing in a volleyball game and her hip hurt so on a whim I took her for an x-ray which showed this condition. She never had any more symptoms until May. We had to find a new specialist as the first pediatric ortho said nothing could be done for her until she finished growing. However her deterioration has been so rapid that our new doctor (who is experienced in Birmingham hip resurfacing) says that it can not wait. We saw him in mid September and he investigated doing a periacetabular osteotomy and femoral rotation but her cartilage is too far gone. We meet with him and some other specialists this week to decide the type of procedure to be done. There is concern with the BHR with chromium and cobalt ions due to her young age. I am happy to hear you have had such good results with range of motion and I hope that we can have surgery which gives my daughter good results. I am also happy to find some others with this condition. I felt like we must be the only ones in the world with this.
Just a quick note to say that our 14 year old daughter was givena lf BHR yesterday by Dr. James Powell in Calgary, Alberta. She has severe Protrusio Acetabuli and it is bilateral. Our Dr. plans to do the right hip in about 2 weeks or so as soon as she is recovered and feels up to it. She has non weight bearing restriction for 6-8 weeks as she was in a wheelchair prior to surgery for about 3 months and her bones are very soft. The Dr. is very concerned about fracturing as she is also very tiny. We are thrilled that he was able to do a resurfacing and feel very thankful to have such a skilled surgeon as her case is a very difficult one. She is very tired today but happy that the journey to the other side has begun. Thank you to everyone for your support.
Hi! Our daughter had her second hip resurfaced today in Calgary,Alberta by Dr. Jim Powell. Her first hip was done two weeks ago and is progressing nicely. We are thrilled and thankful to have such a skilled surgeon in Calgary. Hers is a difficult case and his care has been exemplary. Our daughter has severe protrusio acetabuli and has been in a wheelchair since August so her bones are very soft. She will be non weight bearing for 6 weeks to prevent femoral neck fracture and facilitate healing. She has a long road to recovery ahead of her but we are very positive that she will have a good outcome. If we can ever be of any help to other people, particularily those who are young or have protrusio please contact us. We will post again with news of our daughter’s recovery.
Sincerely Lynn Rt and Lt BHR Jim Powell- Calgary,Alberta,Canada
Fri Jan 19, 2007 3:16 pm
We just returned from our daughter’s checkup. She is now 8 weekspost op on the left hip and 6 weeks on the right hip. After surgery she was totally non weight bearing so she has been in a wheelchair. For those of you new to our case my daughter has severe protrusio acetabuli and was in a wheelchair for three months prior to her surgery. She had severe contractures and no range of motion and is considered a very difficult case. Her x-rays look fine and her bone grafts have healed nicely! She is now able to begin walking with the use of forearm crutches. Her range of motion is improving and hopefully it will continue to as she gains strength. She will continue with physiotherapy both in water and in the hospital. Best of all she is pain free and moving forward slowly but steadily. ..and our Doctor has been wonderful. If we can help anyone-especially young people please contact us. Lf BHR and Rt BHR – Dr. Jim Powell, Calgary, AB
Kaibree is now about 4 1/2 months post op and she is progressing wonderfully. She can now walk without crutches or cane and to see her walking you would never know she has had bilateral hip resurfacing. When we watch her today it is hard to believe that only three months ago she was still in a wheelchair. Kaibree’s progress has been steady. She is becoming more like the active teenager she was before this condition developed. We still attend physiotherapy as she has had some discomfort caused by her iliopsoas tendon so the therapist is targeting that area as well as continuing to work on her external rotation. She swims three times a week with a swimming club and she is starting to take part in normal phys-ed classes at school. She is able to walk a good distance (2-3 kilometers) and is riding her bike again! This resurfacing procedure and the care of a great doctor has give our daughter a chance to resume the active life she knew. We hope that her progress will continue! Success in her case will certainly help other young people receive treatment through resurfacing.